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i am like you Deanka….my appetite has gone to hell., i find i am eating at all hours of the day and night, and usually pretty crappy stuff which is unlike me…….i have just been to have a complete blood test doe. i am persevering with trying yo sleep without drug as i usually feel much worse if i take anything….i am about to start swimming any day now and we shall see how that goes.
i know exactly how you feel, i have tried everything. Last night i stayed up till midnight (having had no sleep the night before ), was busy doing stuff round the apartment, fell into bed and took one of these so called extra strong sleepers (reluctantly), was awake an hour later, dozed till 3 ish, dropped off to sleep and was awake again at 4 am. it is the pits, i dont know what to do next, it clouds your whole life, you have my sympathy. i am no longer allowed to drive, and THAT is tough going!
All the best
3:27 am and no sleep! The meds for Parkinson's are also used for RLS i believe!! My bodyis a complete mess these days, to think i used to run marathons and fly planes!! Oh i wish!!
ps i noticed in an earlier post you have Restless Leg Syndrome, me too , it's the pitts isn't it?? More on that later.
No I can't see me driving again and am finally at the stage when i am not sure i even want to again either, much as i hate being dependent on others. i bought myself an electric bike last week just for a bit of assistance hill wise when i need it especially when grocery shopping. i have to really focus because i am a bit wobbly but i don't go on the roads at all, but i figured if i cant get to the Post Office, the Chemist or the supermarket i would have to move because i certainly cant and don't want to rely on others and my kids live 40 mins away on a good day. i will be fine and it is good fun, watching people looking when i am whizzing by without peddling!!! My car is now finding a new home with my daughter, it is only 4 yrs old Lexus 4 WD, and i have given it to her because resell value is terrible, never will i buy a new good car again, not that that is going to happen. I cant stop thinking of you getting stoned to get some decent rest! i would live in fear of getting arrested here!!! Ciao for now, am off to deal with the massive amount of paperwork/probate that a death brings and i havent even touched the UK accounts Aghhhhhh!!
Sadly last week i had to surrender my driving licence,so on top of everything else bang goes my independence!! My neuro prescribed some stronger sleepers, saidi i had to get some sleep which the lack of makes my PD worse. so i Googled this drug when i got home and it is the date rape drug no less, i was aghast and emailed him, he got the hump and as he had made an error on the script, he took it out on me and waited ten days to re issue it. so bye bye you and and i am already in better hands! This insomnia is far worse than the Parkinson's itself, it jst makes me feel so crappy all the time, cant remember when i had a good day, i am soooo miserable right now and how i wish my gorgeous husband were here with me,i would eat rabbit s…. if if would bring him back……….well back in search of somezzzzzzzzzz i wish!!
OMG! That would never be allowed here i dont think….i will ask my neuro. i had another terrible night, despite feeling so good all day, went for some retail therapy for the first time since my husband died in January and managed three hours with a friend, we had a blast. then i came home and my neighbour told me my garden was a mess! So i set to on that for an hr and half, and was exhausted, but elated, and still awake at 2 am!! Oh how much more does a person have to take???;
My neurologist conducts clinics up north twice a year and sees many farmers, on one visit he saw 30 farmers and 10 were confirmed to have developed Parkinsson's.. ihave no doubt whatsoever that there is a distinct link.
Yvonne, i think you have to expect less sleep at your grand old age of 73 WOW and you tried Marijuana cookies@ !!!I dare not with my Parkinsons drugs, lord knows what reaction i would get. Me making progress? Not tonight, i have had only 1 hr and the time now is 03:40 am Drat!!!!!
Isnt it the pitts@+!!!!??? z
Yours
zzzzzzzzzz!!
Hi Yvonne, Interestingly when i was in Thailand just these past two weeks, at a Wellness Sanctury and Holistic Spa, where i did a de-tox for 5 days followed by a sleep enhancement programe, i met another woman who had flown from the UK just to do this programe as she had CFS and had been taking and still was taking drugs for the past 17 years!!!! She was still taking the pills when she was there which they told her defeats the object of the exercise to take sleeping tablets when on a prgrame such as this one!! I think i am actually getting a litttle bit better too…..i have cut out all caffeine (including wine grrr), all sugar, and anything with anything sugar wise in it, all bread, white rice, potatoes, pasta, (used to be positively addicted to those things, especially white rice as i was born and reared in Asia), no juices, cordials, in otherwords all crap! i slept from midnight to 3 am then woke, went to the loo, then slept again till 5:30am but forced myself to lie still for half an hour to an hour..then i got up. No Pills!! Hoooooray!
Yes i take dopamine for my Parkinson's……
yes i too have tried getting up earlier and earlier but with the partkinson's there is a fine line between being pleasantly tired and exhausted which makes Parkinson's worse. I somehow am going to make the journey to UK next year for my aunt's 90th birthday, and i dont know whether to actually do it or not!!! Seems daunting indeed.
Take care
i think my exposure to pesticides when very young growing up in Hong Komg did it. Our bedrooms were closed up at 5pm and sprayed full of kerosene, then mossie coils were lit and we breathed in this toxic chemical all night long for years. My grandfather also had PD. It is just guesswork of course , who knows,…i used to sleep well when i was in my running days training for marathons, but with knee replacements that is not an option. i am still trying the diet aspect, no alcohol, sweet stuff etc and try and step up the swimming when the weather warms up a bit and am going to get my neurologist to see if we can't change meds, but with PD, the drugs, age and bereavement, it is a tall order!
My aunt used to live in Hassocks but has now moved to Keymer, spent many an hour running on the South Downs, gorgeous area!
i wish i could help you, but sleep eludes me too and i am getting pretty deperate…my eyes are permanently blood shot these days, and jam so darn hungry all the time…….in my case i have Parkinsons but the sleep deprevation is a silent killer,there are so many health related issues with sleep disorders……but i feel something great is going to come forth shortly.!!
