Fear of the bed (and even ‘bed dread’) is quite normal for those with sleep problems. That’s because we’ve learned that the bed is a place for stress and wakefulness rather than relaxation and sleep! Getting a diagnosis of Parkinson’s on top of this is an added stressor that is going to make sleep more difficult, too.
From what you’ve written, it sounds as though the biggest battle you are facing right now is with your own mind. This, too, is common. When we worry, we activate our arousal system (also called fight-or-flight mode). This makes sleep almost impossible. In order to improve sleep, therefore, it’s important that we try to avoid activating the arousal system, or practice techniques that will weaken the effect of the arousal system. There are a few ways to do this, such as:
1. We can recognize that sleep is something we have little control over, therefore there is little point in worrying too much about it,
2. We can ensure that we have realistic expectations about sleep, and understand what ‘normal sleep’ really is,
3. We can practice behaviors that give us the best chance of sleep (examples include following a regular, and appropriate sleep schedule, and getting out of bed when we can’t sleep).
Practicing positive thinking and other relaxation techniques is a good idea, too — just bear in mind that relaxation is a skill, so it requires a lot of practice. Also, remember that the ultimate goal of relaxation is relaxation — not sleep!
You sound as though you’d be a good candidate for CBT-I. Have you talked to your doctor about this, or looked into CBT-I by any chance?
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