[Susana75]

I've finally found y'all! I'm Susana, and please excuse the drawl, as I'm quite the Southern Belle.

Have been dealing with frequent bouts of insomnia for several years, mostly has been some time after I came down with Chronic Fatigue Immune Dysfunction Syndrome which was eleven years ago. Several of my friends have it too but unfortunately we haven't thought or a good way today let eachother know when we have it simultaneously.

My sleepless phases run from forty -eight hours to sometimes a week or two. They are often accompanied by tremendous, irresistible bursts of creativity, and if it lasts long enough I become a comic genius and magnificent philosopher, sometimes with a frightfully oversized sense of self-grandeur. Usually my longer periods of insomnia are followed by days or a week to ten days of hibernation.

Bipolar has been ruled out as well as tumors and several other things that would have been a lot less interesting than just having a beautiful mind and a mother who kept me up late throughout my childhood. Just had an MRI last week which turned up nothing pertinent. Have an appt set for January with a neurologist but trying to get in sooner.

Sometimes the sleeplessness coincides with the onset of another virus. I'm insomniatic before I realize am sick, or maybe the lack of sleep hampers my body's ability to fight off the illness.

Cannot take sleeping pills. Had a bad experience on those. Fell down the longest flight of stairs in my house broke my left leg and five ribs, sustained a concussion and almost went out the bay window at the middle stairway landing. (And no, my husband absolutely had nothing to do with it. That was the first thing the doctor asked.)

Really the insomnia isn't my worst dragon to slay. It's the CFIDS that is so incredibly disabling. I just try to squeeze every drop of good I can out of each and every day. There is always so much to be thankful for and also I'm great at keeping myself entertained. If ya can't laugh about something or other, that's when ya know you're in trouble. Our whole family has kind of a running joke about how little it takes to amuse us.

Looking forward to establishing lots of new friendships here. Am totally not able to work anymore. So I have plenty of time to be a regular. If y'all get sick of me just let me know and I'll shut up. (Maybe!)

Thanks for allowing me to join your really nice forum.

[lisajane.7]

Hiya Susana, welcome to the forum..

you talk about your diagnosis of CFIDS, when was this and how was it diagnosed?.

i ask because i have periods like your self where i dont sleep for days and weeks, maybe napping for 10-15 mins at a time, followed by a few days where i am basically so exhausted i sleep continuously for days at a time!! i call it my catchup, lol i just think my body gets to a point where it can no longer function. obviously due to this i get really low and depressed because my family and friends dont uncderstand at all and i have been called lazy and a bad mother because of my crazy sleep patterns, which is hard, because i am so so exhausted sometimes and dont even get up to go to the toilet!!!

i find it so difficult to get family and friends to understand the extreme effect insomnia has on someones life…

ive only had a problem for a short time compared to most , 3 years, but during that time ive had one episode of normal sleep pattern and that was for a couple of months at the beginning of this year…

i wish the medical proffesion and the people around me would understand a little more….

anyway

if you want to chat im on here most nights and afternoons..

lisa 🙂

xxx

[Martin Reed]

Hey Susana and welcome to Insomnia Land.

Thanks for introducing yourself. I love your positive attitude despite the challenges you're facing and dealing with.

Know that now you're a member of Insomnia Land, you have the support of every single member to draw upon. That's a lot of shared strength.

There's also a ton of advice and information in the forums (and on the blog), so take a look around, get involved and I look forward to getting to know you better 🙂

—

If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

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