John: it sounds like you are really going through the mill on this….I can’t claim to pronounce any miracle cure. I can say that I have also have been dealing with insomnia for many years, starting with severe childhood trauma—since resolved via therapy, but the insomnia had already moved in and didn’t feel like moving out.
I hear you about sleep studies and sleep docs. They are primarily centered on sleep apnea (which I have and treat with CPAP, but I’ve had non-apnea insomnia, too). Many physicians are medical engineers–good on the technical, not so much on empathy. And no one who hasn’t been through this really understands.
You refer to a disability and chronic medical issues. These I cannot address. I can only hope you can find a medical professional who is willing to listen. I have had better luck with women doctors, currently with one who is an ARNP, not M.D.—i.e. with the know-how, but not with the ego which some M.D.s live by.
Re sleep meds, it sounds like you have discovered there is no permanent fix. I found this true with supplements as well–melatonin, etc.
Getting down to it, I am wondering if your main stumbling block is the one I have struggled with as well—-attitude about sleep. You refer to “garbage sleep,” and your moniker tells me you are kind of wearing a badge of sleep anxiety. This is not a criticism, I hear you big time on this….I used to think of insomnia as an all-powerful monster, against whom I had no chance.
I wish I had learned about how to deal with thoughts and how to employ mindfulness. I did not realize for way too many years that I was supporting my anxiety by trying to think my way out of it, until finally the negative thoughts (the monster, etc.) came to predominate.
Fortunately, you have discovered you are not alone in this. Suggest get on Martin’s email list for starters. He had one earlier this month on how thoughts can lead to and perpetuate sleep anxiety.
Hang in there, I know it is a tough road. But I think you have made a good turn here in finding this website.