[mariamoody1985]

I suffer with MS, Depression, Acrophobia and all the side effects from the drugs that are meant to 'help'!! WTF?!!!

Really don't understand how tablets to fight conflicting problems can POSSIBLY help ME!! I wouldn't mind if a doctor was HONEST with you, instead of just trying to get you out the door as quickly as possible.

I reckon, most of you will be nodding at this thinking about your GP, but I LOVE my GP, not in a sexual context, I think she is awesome!!

The reason…she LISTENS before suggesting anything AND she always tells me the side effects of the drugs before asking me if I would like them! Feels like I have a LITTLE control over my own body, which is nice!! lol

My doctor issue is with CONSULTANTS! My neurologist is USELESS, as a doctor! He is the MS 'specialist' for the area I live but he knows NOTHING!! He knows of new treatments he could make me take to see if his little scientific experiment works! That's fair, “lets use disabled people as human guinea pigs”. Is it just me that doesn't understand this system of 'help'??!

Please help me so i know I'm not going completely mad from lack of sleep!!! lol

thanks xxxxxxxx

[Martin Reed]

First, welcome to Insomnia Land. Is your insomnia directly related to your MS, or do you think it's a side-effect of the medication you're on?

I know that here in the US, there are registered sleep clinics that may be a better option when trying to target your specific lack of sleep. I don't know if there is anything similar in the UK; it could be worth investigating.

There does seem to be a link between MS and sleep disorders. Back in December 2009 I mentioned a study on the Insomnia Land blog that found sleep disorders to be twice as prevalent among those with MS:

http://www.insomnialand.com/blog/multiple-sclerosis-and-insomnia/

—

If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

[mariamoody1985]

I have never been a good sleeper! I used to stay up until 4-5 in the morning and drink a bit too often! That was long before I got diagnosed with MS though. I have never been able to relax enough to actually sleep! I go to bed at a certain time to try, as doctors have suggested, but I just lie there for hours. I don't have a clock in my room any more, so I can't see the time. I have tried EVERYTHING a doctor has told me in my life but still find it hard to sleep 🙁

I have read it back and realised it was a very aggressive first post but it was the same night I had fought with my doctor on the phone! lol.

I will re-do my post! lol

[mariamoody1985]

I just read my first post back and realised it sounded really nasty but I had just had an argument with my neurologist on the phone earlier that day and needed to get the thoughts out of my head! lol

Here's a better introduction…

My name is Maria, I am 26. I live in Dundee, Scotland, with my fiancée, Lena. I love everything about my life, except doctors!

I have had MS for 4 and half years now. Without that I would never of met my girl so I can cope with that! 🙂 I have many other problems too but this isn't a medical board so won't tell you any more! lol

I love my car, it's got big batman sticker on the bonnet! I am a big kid! lol. I have lots of children in my family so it gives me an awesome excuse to act like one! haha

I love comedy! Could watch stand up shows all day, everyday!

I love going to the cinema too! Films are awesome way to escape from 'real' life! 🙂

I'm sorry for my initial post being quite horrible, but I needed somebody to rant at and my Mrs goes to bed early (she has MS too)

From now on in, I will not be as grumpy! I may have the occasional rant about doctors or government but will keep them to a minimum! People on here don't need me depressing them even more with all my problems!

Sorry again,

Happy Maria service will resume this evening! lol

🙂 xx

[xdunlapx]

'mariamoody1985' wrote on '22:

I just read my first post back and realised it sounded really nasty but I had just had an argument with my neurologist on the phone earlier that day and needed to get the thoughts out of my head! lol

Here's a better introduction…

My name is Maria, I am 26. I live in Dundee, Scotland, with my fiancée, Lena. I love everything about my life, except doctors!

I have had MS for 4 and half years now. Without that I would never of met my girl so I can cope with that! 🙂 I have many other problems too but this isn't a medical board so won't tell you any more! lol

I love my car, it's got big batman sticker on the bonnet! I am a big kid! lol. I have lots of children in my family so it gives me an awesome excuse to act like one! haha

I love comedy! Could watch stand up shows all day, everyday!

I love going to the cinema too! Films are awesome way to escape from 'real' life! 🙂

I'm sorry for my initial post being quite horrible, but I needed somebody to rant at and my Mrs goes to bed early (she has MS too)

From now on in, I will not be as grumpy! I may have the occasional rant about doctors or government but will keep them to a minimum! People on here don't need me depressing them even more with all my problems!

Sorry again,

Happy Maria service will resume this evening! lol

🙂 xx

Welcome to insomnia land. Is it possible for you to look outside of your area for another neurologist? It might help you help yourself if you can find a better doctor elsewhere. I know how it is to have sub-par medical care simply because of my location. I wish you luck. Let us know if we can help in any way.

Brittany

[AuraTodd]

This is the problem I have found with Dr's that when you mention insomnia, the first thing they do is mention sleeping pills. I actually had an argument with a nurse over this and said in the end 'you obviously can't help me' and left. There is more to life then pills for everything. They put my friend on sleeping pills because she couldn't sleep and she fell from a 10th floor window when opening it up one night to get some air.

Sleeping pills don't help, they make the problem worse. The NHS don't use sleeping clinics, as it involves spending money.

[mariamoody1985]

I have written my neurologist a letter saying that if he does not give me what I know will work then I will stop taking all the medication that he has prescribed for me and he can deal with the consequences!!

Was first time in my life I was so angry that I actually done something about it!

…worried he'll withdraw treatment I'm on or something but I'm sure I can go above him and get put back on it so, know I'll be ok!

I will update you all when I get a reply! 🙂 x

[seenafterscene]

Welcome, Maria. Although I don't have the same diagonoses as you, I certainly can understand the frustration of not having a good doctor. I don't know if you have any other choices but perhaps it is time to go to a new doctor, whether or not she is the best field should be secondary to a good doctor/patient relationship that's comfortable and respectful. I went through a period of a year or so seeing different psychiatrists almost every month, until I finally found a good one. They ARE out there, and if you're unhappy, I say, change. Oh, and good luck sleeping.

[MarinaFournier]

'AuraTodd' wrote on '25:

This is the problem I have found with Dr's that when you mention insomnia, the first thing they do is mention sleeping pills. I actually had an argument with a nurse over this and said in the end 'you obviously can't help me' and left. There is more to life then pills for everything. They put my friend on sleeping pills because she couldn't sleep and she fell from a 10th floor window when opening it up one night to get some air.

Sleeping pills don't help, they make the problem worse. The NHS don't use sleeping clinics, as it involves spending money.

I believe I had the same argument with a physician's assistant, and she had the stupidest perkiness that was supposed to cloak what she didn't know. I think she was the first of the physician practices I fired tat year.

I am so sorry to hear of your friend's cause of death. I can certainly understand your reluctance to take pills. I hope the physician involved was suitably warned/censured or took the event to heart.

In the US, if you're problem isn't fairly obvious sleep apnea, you are not likely to get the medical attention you need, either. Depending on where you live, thee might be a sleep clinic handling other causes of insomnia or sleeping issues, but much depends on your location and insurance contract.

[MarinaFournier]

Quote:

I just read my first post back and realised it sounded really nasty but I had just had an argument with my neurologist on the phone earlier that day and needed to get the thoughts out of my head! lol

I had no problem with it–but I've been reading blogs by one of our members who has a lot of justifiable anger about events in her life.

Quote:

My name is Maria, I am 26. I live in Dundee, Scotland, with my fiancée, Lena. I love everything about my life, except doctors!

I have had MS for 4 and half years now. Without that I would never of met my girl so I can cope with that! 🙂

I noticed that Lena has MS as well. You certainly will understand the other's bad days, and one hopes, be able to assist more effectively. Given the variations in MS and its symptoms, that may not be a possibility.

Lots of folk/traditional songs about your area of Scotland–I am a folkie, and I know rather more about that area than just marmalade, yummy as it might be.

Do you and Lena have a date yet for your wedding, or does it depend on laws being changed in Scotland?

Quote:

I have many other problems too but this isn't a medical board so won't tell you any more! lol

Some of us have no objection to that sort of thing. Does the depression pre-date the MS? My husband and I also have acrophobia coupled with a fear of falling, but I think his is worse. I'm bipolar, so I understand the depression aspect of one's life: my depressions have always been long, several months to over a year, and deep as well. I seem to be controlled at this point through my meds regimen.

Quote:

I love comedy! Could watch stand up shows all day, everyday!

I love going to the cinema too! Films are awesome way to escape from 'real' life! 🙂

They're also good for combatting depression and sometimes allowing one to fall asleep. Some movies are better than drugs for mood altering!

Quote:

I'm sorry for my initial post being quite horrible, but I needed somebody to rant at and my Mrs goes to bed early (she has MS too)

From now on in, I will not be as grumpy!

No need to apologize for my sake–I can endure this manifestation of cranky, and sometimes help find help for the source of it. I can't recall if we have private message capability on this site, but if you need/want to talk offlist, say so, and I'll give you my email addy.

Quote:

I may have the occasional rant about doctors or government but will keep them to a minimum! People on here don't need me depressing them even more with all my problems!

You might possibly be surprised with all the problems of others I read on any given day. I can understand rants as well. We all have our peeves, pet, ghost, or other.

Marina

[MarinaFournier]

'mariamoody1985' wrote on '25:

I have written my neurologist a letter saying that if he does not give me what I know will work then I will stop taking all the medication that he has prescribed for me and he can deal with the consequences!!

Was first time in my life I was so angry that I actually done something about it!

…worried he'll withdraw treatment I'm on or something but I'm sure I can go above him and get put back on it so, know I'll be ok!

Good for you! He may mean well about the clinical trials and experimental treatments, but they are not for everyone. I'm happy to participate in the ones I qualify for, but you are not me, right?

I had a pdoc when I was still living in Santa Cruz (over a ridge of mountains from the San Jose area in CA) who never looked at me in session, and kept proscribing a medication I told him wasn't for me, and didn't work, and he kept increasing the dose until I was nearly falling down for lack of sleep, which is when I went off it and fired him. That was the Year of Firing Medical Staff. I now have a wionderful pdoc, rather like your primary doctor.

Have you talked to her about the idiot neuro?

[MarinaFournier]

Quote:

Really don't understand how tablets to fight conflicting problems can POSSIBLY help ME!! I wouldn't mind if a doctor was HONEST with you, instead of just trying to get you out the door as quickly as possible.

Some meds to treat headaches, have side effects of their own, which could cause … headaches. Great. Then there are the insomnia meds that can cause insomnia or narcolepsy, sleepwalking or worse. Psych meds which cause physical or cognitive problems. Wish it were different, but we understand how minds and bodies work so imperfectly. If we didn't there might be no need for this forum.

Quote:

I reckon, most of you will be nodding at this thinking about your GP, but I LOVE my GP, not in a sexual context, I think she is awesome!!

The reason…she LISTENS before suggesting anything AND she always tells me the side effects of the drugs before asking me if I would like them! Feels like I have a LITTLE control over my own body, which is nice!! lol

It is wonderful when you get medical practitioners who do this! i've decided it's the least I'll put up with, and new practitioners who fail to meet this standard will be fired. My shrink, my endocrinologist (diabetes II, hypertension, high cholesterol, low thyroid), and my dentist all have this behavior. My dentist alone has so many of my friends seeing him that it's funny. He's not in any Preferred insurance program, but he is so worth it: in the six years I'be been seeing him, all my dental phobias have disappeared, and except for gag reflex from bite-wing xrays, have no need of any of my coping methods any more. Even the hard edges on the bite wing film holders have been rounded and softened. My husband actually gets to the dentist on a regular basis these days, after more than 25 years of avoiding them. He had an abcess on a tooth with a hole that had been there for at least two years: pain finally got so bad that he sought help. Needed a root canal and a implant after the abcess was cured.

Quote:

My doctor issue is with CONSULTANTS! My neurologist is USELESS, as a doctor! He is the MS 'specialist' for the area I live but he knows NOTHING!! He knows of new treatments he could make me take to see if his little scientific experiment works! That's fair, “lets use disabled people as human guinea pigs”. Is it just me that doesn't understand this system of 'help'??!

I think I said something about clinical trials in my last response. Not knowing his speciality is criminal negligence by the NHS, allowing him to continue to practice.

Quote:

Please help me so i know I'm not going completely mad from lack of sleep!!! lol

You're not mad, but you are justifiably angry!

Marina

[AuraTodd]

'MarinaFournier' wrote on '26:

I believe I had the same argument with a physician's assistant, and she had the stupidest perkiness that was supposed to cloak what she didn't know. I think she was the first of the physician practices I fired tat year.

I am so sorry to hear of your friend's cause of death. I can certainly understand your reluctance to take pills. I hope the physician involved was suitably warned/censured or took the event to heart.

In the US, if you're problem isn't fairly obvious sleep apnea, you are not likely to get the medical attention you need, either. Depending on where you live, thee might be a sleep clinic handling other causes of insomnia or sleeping issues, but much depends on your location and insurance contract.

Hi Hope you OK. I know her family wanted an inquiry, they have a sleep clinic in London, the NHS is in a real mess at the moment with patients not being able to get past the receptionist to Dr's giving out pills willy nilly. There are some good Dr's out there, it's just finding them.

[yamerias]

Ah I see I'm fashionably late to the party…

Firstly, welcome…I know it is a bit late but I'd been quite I'll last few months…it's a great community here!

Secondly, I understand your negativity toward the medical profession quite well, I suffer with several conniptions including epilepsy, depression and diabetes and things got so bad that a couple of years ago I basically turned my back on them all, never went to see them and mist foolishly of all even stopped taking my medication for about a year. Things spiralled out of control, until I registered to a different doctors surgery, that was last September and I finally have a doctor who not only listens but treats me like a intelligent being and not an idiot.

Things are finally getting on track for me, the specialists actually listen to what I have to say, I'm remembering to take my medications…things look good at last!

[AuraTodd]

'yamerias' wrote on '06:

Ah I see I'm fashionably late to the party…

Firstly, welcome…I know it is a bit late but I'd been quite I'll last few months…it's a great community here!

Secondly, I understand your negativity toward the medical profession quite well, I suffer with several conniptions including epilepsy, depression and diabetes and things got so bad that a couple of years ago I basically turned my back on them all, never went to see them and mist foolishly of all even stopped taking my medication for about a year. Things spiralled out of control, until I registered to a different doctors surgery, that was last September and I finally have a doctor who not only listens but treats me like a intelligent being and not an idiot.

Things are finally getting on track for me, the specialists actually listen to what I have to say, I'm remembering to take my medications…things look good at last!

My doctor mentioned a sleep clinic. what ever that is.

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