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My first post on here was a major rant about hating my neurologist but, after a very long, insomnia-induced letter, I have finally got myself a different doctor! In fact, he is my old neuro's senior!!
They are finally going to try me on a drug I have been fighting for since it was licensed in the UK! I seen him for the first time yesterday and he is going to arrange the drug for me to have a trial on! 🙂 It has made me super happy for the last couple days! Hopefully this will mean the start of getting some DECENT sleep! Will obviously still stay on here and try to be as active as possible though 🙂
That's great news – all those letters paid off! What is the drug you're hoping to try? Did you discuss any solutions that don't involve medication?
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It is Sativex that I have been fighting for. I did find my appointment on Monday quite entertaining, the doctor couldn't look me in the eye! 🙂 He gave me what I wanted though so I was as nice and polite as always. I don't like being nasty or argumentative! Too much stress! Hahaha
I didn't discuss any solutions that don't involve medication as I am more than happy to take this drug! 🙂 I have, however, come off most of my medication in the last few months. I now only take things that treat the symptoms of MS and supplements to try and repair the damage other treatments have done to my body (iron for anaemia, multivitamins for my stomach). I had enough of doctors playing God with my life so I have come off all of them without doctors input and feel a LOT better in myself! My sleep patterns are still all over the place but, as I do not work, I do not have to be too worried about them just now. I'm sure that, once I get all the unnecessary drugs out of my system, my sleep pattern will settle down but, for now, I can cope with it 🙂
Glad to hear you're happy with your reduced medication regime (of course I can't endorse going against the advice of your doctor, though).
Do keep us updated with how you get on with the Sativex – hopefully it was worth the battle!
—If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.
The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.
I will keep you updated 🙂 I hope it was worth the battle but just getting a doctor to listen to me for once has been reward enough!! haha
Maria xx
'mariamoody1985' wrote on '20:I did find my appointment on Monday quite entertaining, the doctor couldn't look me in the eye!
The idiot shrink who prescribed Serzone for me wouldn't look me in the eye, either. Serzone is for depressed people who are having problems sleeping. I, however, was an insomniac who was depressed, and it merely kept me more and more awake. If I said it wasn't helping, that it was keeping me awake, he just kept increasing the dosage–and this was after I'd said in the beginning that sleep meds do not work for me at all. I did finally fire him, after I was getting so little sleep that my body just wanted to collapse from standing position: my knees kept trying to buckle.
It IS weird to have a professional not look you in the eye during an appointment!
'MarinaFournier' wrote on '04:The idiot shrink who prescribed Serzone for me wouldn't look me in the eye, either. Serzone is for depressed people who are having problems sleeping. I, however, was an insomniac who was depressed, and it merely kept me more and more awake. If I said it wasn't helping, that it was keeping me awake, he just kept increasing the dosage–and this was after I'd said in the beginning that sleep meds do not work for me at all. I did finally fire him, after I was getting so little sleep that my body just wanted to collapse from standing position: my knees kept trying to buckle.
It IS weird to have a professional not look you in the eye during an appointment!
I genuinely believe they hide behind their intelligence!! If pills don't work then they are confused!! Instead of looking stupid in front of a patient, they choose not to look you in the eyes because they are embarrassed that their previous opinion was wrong but too powerful to want to admit it!! Every 'treatment' I've ever tried works backwards on me I reckon…joys of being left handed I reckon! 😛 If I didn't laugh about it all I'd cry…can you tell?!!
'mariamoody1985' wrote on '04:I genuinely believe they hide behind their intelligence!! If pills don't work then they are confused!! Instead of looking stupid in front of a patient, they choose not to look you in the eyes because they are embarrassed that their previous opinion was wrong but too powerful to want to admit it!! Every 'treatment' I've ever tried works backwards on me I reckon…joys of being left handed I reckon! 😛 If I didn't laugh about it all I'd cry…can you tell?!!
At times like these, I wonder why it's so hard for a professional to bite the bullet and say “I don't know”. Sure, they save face, but (as I understand from this topic's posts) it's frustrating and confusing to patients. I would certainly be put-off by any physician who didn't look me in the eye; it's not only confusing, but sort of rude…
'mariamoody1985' wrote on '19:My first post on here was a major rant about hating my neurologist but, after a very long, insomnia-induced letter, I have finally got myself a different doctor! In fact, he is my old neuro's senior!!
They are finally going to try me on a drug I have been fighting for since it was licensed in the UK! I seen him for the first time yesterday and he is going to arrange the drug for me to have a trial on! 🙂 It has made me super happy for the last couple days! Hopefully this will mean the start of getting some DECENT sleep! Will obviously still stay on here and try to be as active as possible though 🙂
That's great to hear! It's hard to find a new doctor, and one that'll meet yours needs; congrats for getting over that hurdle. Here's hoping you have smooth sailing with doctors/prescriptions from now on. 🙂
'UliHarp' wrote on '04:That's great to hear! It's hard to find a new doctor, and one that'll meet yours needs; congrats for getting over that hurdle. Here's hoping you have smooth sailing with doctors/prescriptions from now on. 🙂
Me too!! Haha 🙂
'mariamoody1985' wrote on '04:I genuinely believe they hide behind their intelligence!! If pills don't work then they are confused!! Instead of looking stupid in front of a patient, they choose not to look you in the eyes because they are embarrassed that their previous opinion was wrong but too powerful to want to admit it!! Every 'treatment' I've ever tried works backwards on me I reckon…joys of being left handed I reckon! 😛 If I didn't laugh about it all I'd cry…can you tell?!!
aHA! Maybe that's my problem, that I'm also left-handed. I do have a number of “idiosyncratic reactions” to medications. Peppermint and chamomile are supposed to be ood for bad tummies, but they make me toss my cookies. Ewwwwcalyptus has a similar effect on me. Sleep meds keep me awake. Decongestants don't clear my nose, they stuff it up. In my first pregnancy, when I didn't know I was yet, pizza was good for soothing my stomach. Go figure!
Mostly what we're talking about with drs. not able/liking to admit they're wrong is a product of an older generation (my parents, or older, which means positively antediluvian) that is fading out of professional practice, for which we are grateful. Few doctors I see anymore get defensive when I ask a lot of technical questions in appropriate vocabulary, unlike the ones in college, who would angrily ask if my father was a doctor.
'MarinaFournier' wrote on '06:aHA! Maybe that's my problem, that I'm also left-handed. I do have a number of “idiosyncratic reactions” to medications. Peppermint and chamomile are supposed to be ood for bad tummies, but they make me toss my cookies. Ewwwwcalyptus has a similar effect on me. Sleep meds keep me awake. Decongestants don't clear my nose, they stuff it up. In my first pregnancy, when I didn't know I was yet, pizza was good for soothing my stomach. Go figure!
Mostly what we're talking about with drs. not able/liking to admit they're wrong is a product of an older generation (my parents, or older, which means positively antediluvian) that is fading out of professional practice, for which we are grateful. Few doctors I see anymore get defensive when I ask a lot of technical questions in appropriate vocabulary, unlike the ones in college, who would angrily ask if my father was a doctor.
(Looks at hands) Oh, my, I'm left-handed too! It's strange that you mention “idiosyncratic reactions” to medications/remedies. Peppermint also gives me queasy stomaches, and similarly, Pepto-Bismol just makes me “toss my cookies”. I've never really considered all this before, but now… creepy!
On another note, I'm glad to hear that not being able/liking to admit they're wrong is fading in professional practice. Calms my nerves a bit.
'UliHarp' wrote on '05:(Looks at hands) Oh, my, I'm left-handed too! It's strange that you mention “idiosyncratic reactions” to medications/remedies. Peppermint also gives me queasy stomaches, and similarly, Pepto-Bismol just makes me “toss my cookies”.
Yes, if I'm in the hours-long throes of nausea, wondering when…the Pepto speeds up the process! I learnt this in college when I had a really bad migraine.
'MarinaFournier' wrote on '07:Yes, if I'm in the hours-long throes of nausea, wondering when…the Pepto speeds up the process! I learnt this in college when I had a really bad migraine.
I steer clear of Pepto no matter what. Or, rather, anything that might induce nausea. If there's anything I hate most, it's the sensation/act of nausea. It seems childish/overdramatic, I know, but nausea always makes me feel like I'm dying inside-out. (shudder)
Trust me, I understand. Mine has gone on for hours before resolution. Not quite as bad as a migraine, but often results from one.
One time only, nearly ten years ago, I had such an awful dizzy spell for several hours. I had to call my husband, who worked 55 miles away at the time, to tell him I couldn't drive and needed him to pick up our son from school. Called my doctor, no other symptoms, no prior symptoms. Was given some anti-vertigo meds, never happened again. We think it was a migraine manifesting only as vertigo. Never had it again. Very strange.
The first time I had too much to drink, on a break at college, I couldn't sleep for the dizzy. *I* don't get drunk and pass out–that would have been too easy! The other two times, I “got rid of the evidence” and woke up okay the next morning. As i usually get hangover symptoms *before* I get officially drunk, I have no incentive to get drunk in the first place!
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