People don’t understand.

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Viewing 13 posts - 1 through 13 (of 13 total)
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  • #23180
    Theresa
    ✘ Not a client

      I have a friend who doesnt have a clue what I’m going through.  It’s discouraging because lm tired of trying to explain how sick I feel after no sleep, how it affects me mentally and physically.  She also asked me to drive 45 min away when i really can’t drive at all. She doesn’t understand what im going through at all.  I’m Thankful that there are others who have gone through this that really understand. I didn’t understand till I now am going through this. I get the idea that this friend thinks I am complaining when I’m only answering her question “How are you?”   Hoping she will understand more.  Now I have to explain that I can’t drive unless my sleep improves.  I do not want her to feel sorry for me… this is no different from any other illness…I also have been diagnosed with Generlized anxiety disorder which makes everything worse.   Thanks for letting me vent.

      #23199
      Martin Reed
      ★ Admin

        I think you have written what many people feel and what many people here go through. The fact of the matter is, people without insomnia (or people who have never experienced insomnia) don’t know what it’s like to live with long-term sleep issues.

        Everyone has heard the word insomnia, but the word is misunderstood, overused, and misused. Insomnia is not simply one bad night of sleep — it’s a long-term issue that can have a very real impact on quality of life. People with insomnia don’t get the support they need (or deserve).

        One of the main aims of this forum is to have a place where those living with sleep deprivation can chat with others who know exactly what they’re going through. Thank you for sharing.

        If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

        The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

        #23211
        jillyrunpee
        ✘ Not a client

          I totally understand. It’s a year and a half now. I don’t know how I am still alive and sane.

          #23372
          Martin Reed
          ★ Admin

            I’m actually writing an article about what insomnia sufferers are tired of hearing.

            If anyone else has something to contribute, please post it to this thread — what clichéd or ineffective advice do you receive when you tell someone about your sleep issues? What is the worst ‘advice’ you have been given?

            If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

            The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

            #23409
            jillyrunpee
            ✘ Not a client

              That will be a great article. Even my doctors don’t take this seriously. I have a chronic condition that diminishes my quality of life, and they just try different meds, then shrug when nothing works. I have to go to mexico to get sleeping pills now. It’s awful. I hate begging doctors for medicine.

              This is an illness  and should be treated with respect. There is a reason why sleep deprivation is considered torture for prisoners of war. See the Geneva Accords.

              Frustrating. After a year of seeing my doctor several times a month to try different meds, he eventually gave up and said there was nothing else to try. Isn’t that nice?

              #23464
              Martin Reed
              ★ Admin

                Ugh, that must be so frustrating. I am sorry to hear about your experience.

                If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

                The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

                #23544
                Chris
                ✘ Not a client

                  Responding to Theresa- I read your vent-

                  Until you experience for yourself to your degree

                  it is like when you here a story and you don’t

                  believe it. When I had a job and 4 plus hours of

                  sleep a night that must have been heaven. No,

                  it was just 12 years ago. I am even new to social

                  media to this degree, I am so desperate now.

                  Believe that or not, and now I am passing 6 days.

                  This is scary, Nothing has made a difference.

                  Doctor’s can only try to help, if that and then

                  individual tolerance. I shared in my 1st post

                  what hour I was at, this time. And the help

                  seemed surprised that I was doing so?  I stopped

                  looking at time, serious. I am only counting

                  and now doing this because I am scared that

                  as I sit here and use this device is also a no-no

                  before bedtime. It is 9pm and for those who

                  can actually relate, I sent my 1st post at 11pm

                  last night. A mere 22 hours ago. The last sleep

                  I got was more than 6 days. You would think

                  each night, and no.

                  I would like to vent more- but that is one of

                  the many things I have been doing to help myself.

                  Smile about it instead of being upset that a  friend

                  does not understand what it is like for us experience

                  and sharing. I had a hard time believing last time

                  when 111 hours was how long with out a bleeping

                  wink. And here we are again at 153 hours and counting.

                  Thank you again for letting me vent-

                  Theresa, Jillrunpee & Martin!

                   

                   

                   

                   

                   

                  #23549
                  Ting
                  ✘ Not a client

                    I would like to give u a big hug I understand this feeling. It’s really frustrating when ppl think nothing much when u can’t slp. They think u are thinking too much…just relax..go slp when in reality u tried everything but can’t get to sleep.

                    I understand that tiredness and trying to keep in control of your life when inside u are crumbling.

                    I pray that we will recover from this together..

                    #23557
                    jillyrunpee
                    ✘ Not a client

                      Hugs right back. We are the exhausted people no one notices.

                      #23558
                      jillyrunpee
                      ✘ Not a client

                        BTW,  I went to Mexico again this weekend. I like it there, but never miss a chance to get sleepy meds. It’s not cheap, but they don’t give me a hassle.

                        I try not to take them as often as possible to prolong my use of them. This is what I am reduced to.

                        I find if I get to bed around 9-10pm, I usually get a night I don’t need them, though I wake a lot. And I have too many loud unpleasant dreams on those nights. I miss having dreams that are just background noise, instead of ones that make me cry when I wake up. Anyone else having dream problems as they get more sleep?

                        • This reply was modified 6 years, 2 months ago by jillyrunpee.
                        #23686
                        Martin Reed
                        ★ Admin

                          Here’s a link to something I put together for HealthCentral:

                          What Insomnia Sufferers Are Tired of Hearing

                          Recognize any of these?! What did I miss?

                          If you are ready to stop struggling with insomnia you can enroll in the online insomnia coaching course right now! If you would prefer ongoing phone or video coaching calls as part of a powerful three month program that will help you reclaim your life from insomnia, consider applying for the Insomnia Mastery program.

                          The content of this post is provided for informational and educational purposes only. It is not medical advice and is not intended to diagnose, treat, cure, or prevent any disease, disorder, or medical condition. It should never replace any advice given to you by your physician or any other licensed healthcare provider. Insomnia Coach LLC offers coaching services only and does not provide therapy, counseling, medical advice, or medical treatment. All content is provided “as is” and without warranties, either express or implied.

                          #24050
                          dreamtsleep
                          ✘ Not a client

                            Hello Dear Friends, I hear you, I hear you, I hear you. Chris with the six nights -I’ve been there (3×). It is a rollercoaster though -u will /by now -have had some again..?…   And the ‘rest of the world’ – even the way they turn their heads -quickly without pain (I watch them from another dead bus journey to work..) the way they use their faces, their expressions & eye contact. All of that has ceased for me with heavy duty sleep dep – I minimise painfully every move -feeling alone, ashamed, freakish…And of course in a lot of pain.

                            But actually when I open up to some ppl about it -they do say – my God this has started happening to me -Im too tired to walk up the stairs….Who knows what the hell they’re going through. I mean this brave face world thing hides a multitude of anxieties and pain and more and more folk struggling to sleep. Such devastation though, insomnia. Makes everyday an endurance test from hell. And the fear it can bring – I do live in hope though!!

                            #24051
                            dreamtsleep
                            ✘ Not a client

                              -but also to say oh bloody yes!! those ones that have zero insight and sympathy -for me they can trigger the situation even worse… That feeling of pressure to ‘snap out of it’s to ‘not be so ridiculous’…..Sometimes key figures say this, like my father-in-law at Christmas time (wch in-law visit-wise is a huge social-phobia/insomnia trigger for me) has NO insight into the stress that can take down a mind -he’s an ex-sergent major & does not even have any sympathy even for combat PTSD!!!!! (He has a V loud voice & in a way terrifies me) I, from my own childhood traumas have long lived with social anxiety & insomnia…..And these sort of people with zero sensitivity push up my pressure gauge & yes I want to say fk-em …and HAVE become so much more bold -even when crazily sleep deprived – but then give me the night and the blind fear reigns…. unless I can bring on a different state of mind, an attitude BEFORE the insomnia kicks in -but this, unless already there, is V difficult to switch over to……But honestly -we are the empathetic ones bcos wev lived thru this….Luckily my job is all about empathy….Thank God xx

                            Viewing 13 posts - 1 through 13 (of 13 total)

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